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Genetic Alliance

Company Information

4301 Connecticut Ave NW Ste 404
Washington, DC
United States
Phone: 1 202 966 5557
Fax: 1 202 966 8553

Overview

Leveraging the expertise of the genetics community builds capacity in our members through collaborative engagement. Genetic Alliance is at the crossroads of the genetics community we provide a rich nexus of advocacy and community organizations, government, industry, and private entities. These interactions accelerate translational research; improve the climate for the development of technologies; encourage cohorts for clinical trials; increase the availability of linked, annotated biological resources; and ultimately lead to improved human health. Informed consumers, advocacy groups, and community organizations create a demand that is met by genomics technologies, tests, and treatments thus creating a favorable business climate for the early adoption of new products that result from academia, biotechnology, and pharmaceutical organizations. In our central position in the genetics community, we are able to empower individuals and advocacy organizations to help better the lives of their constituents: individuals and families living with genetic conditions.

Corporate Structure

CHIEF EXECUTIVE OFFICER

Sharon Terry

TOP EXECUTIVES

Polycystic Kidney      Member, Professional Advisory Board, Autosomal Rec
Mary Peckiconis      Office Manager and Bookkeeper
Rebecca Sample      Office Assistant
Elliott D Hillback      Treasurer
Kurt Christensen      Public Health Fellow
Amy Garrison      Genetic Counseling Fellow
Nancye W Buelow      National Director Consumer Advocacy, Coram Healthcare, North Carolina
Brandi Blaisdell      Board of Directors
Greg Gilmore      Public Policy Fellow
Tam Nguyen      Electronic Communications Assistant
Carol Greene      Professor of Pediatrics
Helen Travers      Genetics Resource Specialist
Natasha Bonhomme      Program Coordinator
Mona Chughtai      Public Policy Intern
Lucy Wise      Chief Dog (Bio)
Patricia Furlong      Board of Directors
Alyson Krokosky      Genetics and Public Health Fellow
Wendy R Uhlmann      Genetic Counselor, Clinic Coordinator Medical Genetics Clinic, University of Michigan
Andria Cornell      Public Policy Fellow
Loraine Oman-Ganes      Board Member
Scott D Berns      Board of Directors
Yojiro Konno      Genetics Fellow
Angela Townsend      Executive Assistant
Neil Thakur      Special Assistant
Amy Brower      Director of Medical Informatics and Genetics, Third Wave Technologies
Nancy Johnson      Senior Public Policy Advisor, Baker Donelson
Saleen Chenevert     
Andy Mekelburg      Vice President of Federal Affairs, Verizon
Zhihong Shen      International Program Coordinator
Joann Boughman      Executive Vice President, American Society of Human Genetics
Terry Vaz      Board of Directors
Paul Radensky      Partner, Mcdermott Will & Emery
Alex Rihm      Program Assistant
Christine Bechtel      Vice President of Public Policy, Ehealth Initiative
Michelle Adams      Legislative Director, Office of Congresswoman Louise Slaughter
Joan Weiss      Founder
Alexander Bolton      Public Policy Intern
Nathaniel Snyder      Public Policy Intern
Sun Hae Hwang      Programs Intern
Nicole Gulick      Newborn Screening Intern
James O'Leary      COO
Melinda Pearl      Genetic Counseling Intern
Kristi Zonno      Director of Genetics and Health Policy